Rare Disease Day 2025

Rare Disease Day is observed on February 28, 2025. Each year it takes place on the last day of February, making its occurrence February 29th in a leap year. Established in 2008 by EURORDIS (European Organisation for Rare Diseases) and its partners, the day was created to raise awareness about rare diseases and their impact on patients' lives. It aims to highlight the need for improved research, treatment, and access to care for the over 300 million people worldwide living with rare conditions.

A rare disease is defined as one affecting a small percentage of the population, often fewer than 1 in 2,000 people. Despite their rarity, there are over 6,000 identified rare diseases, many of which are genetic and chronic. Rare Disease Day emphasizes the challenges faced by patients and their families, advocating for better support and collaboration among researchers, healthcare professionals, and policymakers.

To participate in Rare Disease Day, individuals and organizations can join awareness events, share stories on social media using the official hashtags, or wear stripes, a symbol of the day. Supporting research initiatives and engaging in discussions about healthcare equity also helps amplify the voices of rare disease communities, fostering hope and progress.

More dates:

• Rare Disease Day on Feb 28, 2026
• Rare Disease Day on Feb 28, 2027